Run for A-Rare-Ness & Wiffle for a Cure

For a Community. For a Cause. For a Cure.  Run for a-RARE-ness and Wiffle for a Cure   Join us on Saturday, May 2nd, 2026, for the 6th Annual Run for A-Rare-Ness and Wiffle for a CURE! It’s a day packed with fun and purpose, featuring food trucks, bounce houses, face painting, yoga, vendors, and so much MORE! We are on a mission to find a CURE for MPS1-Hurler Syndrome—a RARE genetic disorder that shortens life expectancy and causes children to suffer from enlarged organs, obstructive airways, heart disease, lifelong pain, skeletal deformities, and more. We need YOU! All proceeds benefit The Kennedy Ladd Foundation, Inc., a 501(c)3 nonprofit dedicated to providing hope and support to families battling MPS1. Our initiatives include: Providing an iPad, gift card, screen protector, and case to MPS1 patients Funding groundbreaking research to find a cure and improve treatment options for MPS1Creating hope, community, voices, and a movement to eradicate MPS1 Every Penny CountsPennies turn in